Learning how to be a Good Caregiver

Take care of yourself first. Here are just a few suggestions:
  • Take time for yourself and for the things you enjoy doing.
  • Eat well, exercise, and get a good night's sleep.
  • Know your limits.
  • Watch for stress and depression and get help if you have either one.
  • Allow others to help with the care giving.
Educate yourself about HD & about care giving:
  • You need to understanding that your relationship and care giving responsibilities will change over time.
  • Read up on being a caregiver for someone with Huntington's Disease. Here is just one of the many valuable resources that can assist you, A Caregiver's Guide to Huntington's Disease.
Find supportive resources:
  • Remember you can't do it all
  • Many wonderful resources are listed in the Pennsylvania Health and Human Services Resource Guide
  • Find someone you can talk to about the challenges of care giving. It may be a friend, a family member, your pastor, someone from a care givers or HD support group or our HD Care Coordinator, Joanne.
For more information contact Philly Cure HD's Care Coordinator, Joanne at 215-219-3521 or joannehdcare@phillycurehd.org.

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