Join Us

Attend any of our educational, social, or fundraising events.

You can keep informed of all our events by subscribing to our monthly E-Newsletter, by checking our Philly Cure HD (Huntington's Disease) Facebook event's page and/or checking with our Upcoming Events here on our website.


Consider participating in HD research, clinical or observational.

Did you know that some of the HD clinical trials have been slowed as they have had difficulty recruiting sufficient participants? You can find an HSG's clinical research site nearest you by visiting the Huntington's Study Group. If you yourself can't be a participant, please help educate others about the need and perhaps you can help transport someone to the testing sites.


Become an HD advocate.

Help educate others about Huntington's disease and let others know about Philly Cure HD's support to the local HD community. Click here for a printable copy of Philly Cure HD's brochure.


Give of you time or talent.

Speak with any of our board members, call 215-219-3521, or email info@phillycurehd.org if you are interested in volunteering. Here is just a partial list of what our volunteers can do:
  • Offer to be on a planning committee or on our board of directors.
  • There are occasions when an individual or and HD family needs help. Perhaps it could be with transportation, yard work, someone to pick up something from the store or pharmacy or even just a listening ear.
  • There are times when we need someone to review and edit a variety of written things such as letters, posters, website content etc..
  • Volunteers can do general or event specific solicitation for support or sponsorships from local businesses.
  • Volunteers are needed to assist at set up, registration, clean up, etc. for one of Philly Cure HD's events.
  • On occasion there may be volunteer needs for computer work such as data entry or promoting Philly Cure HD through social media.

You may want to donate to Philly Cure HD:
  • Direct donations can be mailed to Philly Cure HD at PO Box 4054, Philadelphia, PA 19118 or click here to donate online.
  • Consider making a gift to Philly Cure HD in memory of someone or in honor of someone's birthday, anniversary, graduation, and wedding.
  • You can donate to Philly Cure HD through your United Way contribution, use our #49931
  • If it is available to you through your employer, don't forget about Matching Gifts Programs, to maximize your contribution.
  • We hope you will consider including a gift to Philly Cure HD in your will or living trust.

You may help by offering your new ideas

Let us know what you feel Philly Cure HD could be doing. You may have ideas for fundraising, HD advocacy, ways to connect the HD community, or educational or support needs. Contact us a 215-219-3521 or info@phillycurehd.org. If you have already been involved with Philly Cure HD, you may also want to consider completing our client satisfaction survey.