Philly Cure HD

Philly Cure HD offers support to the local Huntington's disease community, educates the greater community about HD and the impact this neuro degenerative genetic disorder has on individuals and families, and supports HD research.

We invite you to:

Introduction from Sherri McElfatrick

I wanted to take a moment and introduce myself as many of you have worked with Joanne Luz over the years. My name is Sherri McElfatrick I have taken over the position of Philly Cure HD's Care Consultant on a part time schedule. My hours will vary depending on needs. I am a Licensed Social Worker with a background in case management with the chronically ill as well as over a decade of working in Hospice and Palliative Care. I am looking forward to assisting you with resources, education and emotional support. Most of what I will be doing will be over the phone, if you are more comfortable with another form of communication please let me know. Feel free to call or email me as concerns or questions come up, I am happy to help!

I will also be looking at support groups and social events in the next couple of months, if you have any suggestions please let me know. I am developing a survey to send out regarding your preferences to best serve your needs in the future. I look forward to hearing from you.

Upcoming Events

Coming soon:
Information about dates and times for upcoming support group and care givers chat will be posted here.

Visit our library of past event photos and videos

Support our annual appeal



It was the mid 1980’s when I first heard learned about Huntingdon’s disease. I watched a friend with this severe condition deteriorate, as their family struggled with the emotional impact of their own possible diagnosis. At the time, very little was known about Huntingdon’s disease (HD) and very few resources were available for families afflicted and dealing with the disease. To support my friend, I went to the library to learn all I could about HD, and I eventually became an advocate and volunteer for individuals and families dealing with HD.

Leading Philly Cure HD is a privilege and I, along with the Board want to continue to meet the needs of the over 125 clients and families we serve each year in the Delaware Valley by providing services, education and research dollars at no cost to our clients.

Because you are a family member or friend that has knowledge of someone who is suffering from the devastating symptoms caused by Huntington’s disease, I know you appreciate the value of the services Philly Cure HD provides to our families. Philly Cure HD is a volunteer run organization that was established in 2011 to support individuals and their families afflicted with HD and to support research in the Delaware Valley Region.

We are most grateful to many of you, who over the past year, have given your time, a donation or supported the Walk or Luau. You fuel our mission to provide support groups, caregiver chats, social events, and education to various health professionals, and donations to local researchers. Please consider honoring our clients and family members with a gift of hope. We believe there is power and resilience in how we support each other, and that we can tackle HD together through client support, advocacy and medical research.

Thank you for supporting our efforts with a gift of hope this holiday season.

Sincerely,


Susan Arnold Susan Arnold Chair, Philly CURE HD

P.S. Let me add a special heartfelt thank you to Joanne Luz, our HD Care Consultant, who has been with us since 2012. She is retiring the end of 2018 and we will miss her greatly.
Philly Cure HD Inc.
2815 Edge Hill Road, Huntingdon Valley, PA 19006
tel: 215-219-3521 | email info@phillycurehd.org
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